※ [本文轉錄自 tmlu 信箱]
作者: tm@bbs.sob.com.tw
標題: ◇ [參考]Autism FAQ (3):Advice for the parent w …
時間: Mon Oct 14 21:53:06 2002
作者: Jf (寫給往事的一封匿名信) 看板: NTUStar_rain
標題: [參考]Autism FAQ (3):Advice for the parent who just discovered their ch
時間: Thu Sep 27 19:39:24 2001
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Autism FAQ - Advice for the parent who just discovered their child is
autistic
_________________________________________________________________
I solicited and received such advice on the mailing list and received
a number of replies which are all listed verbatim in a separate memo:
"Advice to Parents who Discover their Child is autistic" (URL:
http://www.autism-resources.com/advice-to-parents.html). This is a
very brief summary of some of the items:
Some Things To Do
* Make certain that the determination that your child is autistic
was made or verified by a professional who has experience with
autistics.
* Talk to other parents of autistic children (see paragraph below on
organizations).
Books
Michael Powers's Children With Autism: A Parent's Guide has a good
reputation, but there are some newer books aimed at parents. Another
book with a good reputation is Elizabeth K. Gerlach's Autism Treatment
Guide from Four Leaf Press. There are a number of books describing
parents' experiences with autism and though some may be slanted a
particular kind of treatment, probably all have value in allowing you
to share the experience of other parents. Catherine Maurice's Let Me
Hear Your Voice is one example.
Treatment & programs
Every treatment for autism has its detractors and none has proven to
benefit every case. Thus, the task of judging the effectiveness of
potential treatments will ultimately fall on you--to a larger extent
than you will feel qualified to make. If the professional to whom you
take your child strongly recommends some program or treatment, know
that there are others who will recommend some other just as strongly.
Note that many programs are made up from parts of several methods.
Organizations
In the USA, the national society is the Autism Society of America
(ASA). It has local and state chapters, so it may help you to find a
local support group. Another organization of value is the Autism
Research Institute (ARI), which includes publications.
Things to watch out for
* Miracle cures and people who tell you that their way is your
child's only hope.
* People who think your child's autism is an emotional disturbance
or is your fault.
* Teachers, therapists, social workers, etc. working from outdated
information.
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